Money is crux of my issues atm. Living on SSP and housing benefits leaves me with little to spare. Because of a badly timed direct debit I actually went overdrawn on my account (literally if it had gone out the next day it would have been fine). This, as you would expect, meant my mobile was cut off very, very briefly. 45 minutes and 2 calls later it was all sorted out. The Co-operative bank's customer adviser was very helpful, and the fee had already been wavered as it was the first time it had happened on my account. He also gave me very sound advice on what to do if I thought it would happen next time. And, surprise surprise, virgin media was all too helpful when I called them too sort it out.
I am actually to the point where I want to be working again... But because of change in my capabilities I need to do a phased return to work. Ultimately I may even have to switch jobs, if my current job triggers to many seizures. Of course, that's only something only time will tell.
There's just a few many things on my needed list a the moment, like new glasses. The reduction in inter-cranial pressure means my distance prescription is right off now. A new pair is in £200 region.
If I had to make a wish list this would be it
- lack of seizures (unlikely, I haven't had any untriggered ones for a little while but the triggers are everyday occurrences)
- Ability to work enough hours to not have to worry about loss of SSP and housing support that my return to work will mean.
- new glasses
- new laptop
- clear MRI
- for any seizure I do have to a) not give me muscular weakness and lock of motor control in right side, b) to not the aforementioned persist after a seizure has long ended
- no need for a cane (see previous sentence)
- Oh and since I'm asking for the impossible or the improbable - wealth, fame and fortune?
No comments:
Post a Comment